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Essays for families following a fast-moving field

Founder notes, contributor essays, parent guides, and deeper commentary live here. Day-to-day trial, regulatory, research, and AI stories stay in Rare Disease News.

Access and Policy

The AI Revolution Should Also Be a Care Revolution

If AI unlocks new productivity, rare disease families should be part of the conversation about where that value goes: care, support, education, and dignity.

Why it matters: Rare disease families live with care needs that are often invisible to economic debates. The future should make those needs more visible, not less.

Access and PolicyFuture of CareCare

Source: Founder note

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