Interview library
A growing archive of documentary-style interviews with scientists, clinicians, advocates, families, and foundation leaders.
7 interviews shown
Dr. Guoping Feng
Welcome — I’m Ron Kleiman, and this is GENEration Hope. In this episode, I’m joined by Dr. Guoping Feng, Professor of Neuroscience at MIT, affiliated with the McGovern Institute, the Yang Tan Collective, and the Broad Institute. 
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Sue Lomas
Sue Lomas helped build the Phelan-McDermid Syndrome community in the earliest days—when families were scattered, information was scarce, and finding “your people” took persistence. In this conversation, Sue and I talk about how rare-dise...
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Dr. Katy Phelan
Welcome to GENEration Hope — I’m Ron Kleiman. Today’s guest is Dr. Katy Phelan, a pioneering human geneticist and one of the founders of the Phelan-McDermid Syndrome Foundation (PMSF). This conversation was recorded at the PMSF Annual Co...
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Dr. Curtis Rogers
Dr. Curtis Rogers is a Senior Clinical Geneticist at the Greenwood Genetic Center and a long-time leader in the Phelan-McDermid syndrome (PMS) community. In this wide-ranging conversation recorded at the 2024 Phelan-McDermid community co...
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Dr. Wendy Chung
“In one week I diagnosed a 72-year-old with Rett syndrome and a three-week-old with Rett syndrome.” Newborn genome sequencing isn’t science fiction anymore. It’s already changing which babies get diagnosed, when they get treated, and how...
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Monica Coenraads
Monica Coenraads, founder and CEO of the Rett Syndrome Research Trust (RSRT), has led the charge to cure Rett Syndrome—raising over $123 million and driving multiple gene therapy programs now in clinical trials. In this in-depth conversa...
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Dr. Alexander Kolevzon
Welcome to Generation Hope. In this wide-ranging interview, Dr. Alex Kolevzon (Mount Sinai) sits down with Ron to discuss the science, the trials, and the human side of gene therapy for rare neurodevelopmental disorders. In this episode...
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