Shorts and clips
These are useful discovery moments and highlights from the YouTube Shorts playlist. Full long-form conversations stay in Interviews.
Dr. Feng talks about the reality families live with — and what it would mean if we could truly treat severe neurodevelopmental disorders. Full interview on GENEration Hope.
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Dr. Feng explains why many monogenic neurodevelopmental disorders feel solvable now — if we put enough people and resources behind them. Full interview on GENEration Hope.
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AAV vectors can work in one species and fail in another. Dr. Feng explains why the blood–brain barrier is species-specific — and what that means for brain gene therapy. Full interview on GENEration Hope.
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Dr. Feng explains why SHANK3 moved into clinical trials quickly — and what it takes (money, people, focus) to translate science to patients. Full interview on GENEration Hope.
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Dr. Feng on the race against time in neurodevelopmental disorders — and why earlier treatment can mean better outcomes. Full interview on GENEration Hope.
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One of those moments that stops you: a student recognizes SHANK3 across the world—proof awareness is spreading.
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Sue shares the quiet, hard part of stepping away—what purpose looks like after you’ve given years to a cause.
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Sue explains why the pace of progress is accelerating—and why research only moves if we protect and support it.
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A moment that rewired what Sue believed was possible—why hope in rare disease isn’t abstract, it’s lived. #raredisease #phelanmcdermidsyndrome #shank3 #hope #specialneedsparenting #generationhope #disability
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Sue Lomas shares how rare disease organizations support each other—RSRT, Angelman, Prader-Willi and more—so no one has to build alone.
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Dr. Katy Phelan on what really built the Phelan-McDermid Syndrome Foundation — families supporting each other and pushing progress forward. New interviews monthly: @GENErationHope_1 #PMSF #RareDiseaseAdvocacy #PhelanMcDermidSyndrome #GEN...
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Confused by genetic testing? Dr. Katy Phelan breaks down microarray vs sequencing — and why chromosome analysis can still matter for some families. More helpful clips + monthly interviews: @GENErationHope_1 #GeneticTesting #Microarray #G...
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Dr. Katy Phelan takes us back to the earliest days of identifying 22q13 deletions — and how discovery turned into collaboration, then community. Subscribe for monthly episodes. @GENErationHope_1 #22q13 #SHANK3 #Genetics #RareDisease #GEN...
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Dr. Katy Phelan shares something striking: most families aren’t afraid of gene therapy — they’re worried their child won’t qualify. Follow for monthly interviews and updates. @GENErationHope_1 #GeneTherapy #ASO #RareDisease #PhelanMcDerm...
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